Jesy Nelson Celebrates Twins Milestone in SMA Campaign

got emotional as she shared a sweet snap of her baby twins wearing leg splints on Wednesday - after celebrating a 'major milestone' in her SMA campaign.

The singer, 34, revealed in January her now nine-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition. 

And last week she shared her joy as the announced they would roll out 'heel prick' testing on newborns for spinal muscular atrophy.

Following this news she took to social media this week as she posted a snap to her Instagram Story of her little ones.

They looked adorable as they smiled back at her in their matching outfits as their feeding tubes and leg splints were visible.

Feeling emotional, she captioned her post: 'My actual heart' along with a teary-eyed emoji and white heart. 

Last week Jesyshared her joy over the major milestone in SMA testing. 

The late diagnosis for her daughters means they are likely to never be able to walk and have specialist equipment to help them breathe at night as well as feeding tubes. 

Despite the UK's National Screening Committee rejecting calls to introduce checks for another muscular disease in January, on Wednesday  announced plans for more than 400,000 babies to be screened for the condition from October 2026.

The news comes following calls demanding the health secretary to overrule the committee's guidance and make effective treatment more accessible on the NHS.

Celebrating the news, Jesy took to her Instagram and wrote: 'A big step forward for SMA, ISE have announced to start screening for SMA in England will now begin in October 2026. I am so proud as this is a major milestone for the SMA community'.

The singer has campaigned tirelessly for the NHS to expand its screening to check for spinal muscular atrophy following her own experience with her daughters.

The pilot will see an estimated 400,000 babies tested in England. 

The  currently carries out 'heel prick' tests on babies at around five-days-old to check for just 10 treatable conditions, including cystic fibrosis. 

In a letter addressed to the singer and Giles Lomax, chief executive of SMA UK, Streeting said: 'At our meeting I committed to seeing whether the in-service evaluation of SMA screening could be implemented faster and cover a wider geographical areas.