Advertisement
shared a sweet video of her baby girl laughing as she planted a kiss on her in an adorable new social media video on Wednesday.
The star, 34, welcomed daughters Ocean Jade and Story Monroe prematurely in May 2025 with her ex-fiancé, Zion Foster.
But last month, she revealed the devastating news that both babies had been diagnosed with genetic neuromuscular disease, Spinal Muscular Atrophy Type 1 (SMA1).
The condition weakens the muscles by affecting the motor nerve cells in the spinal cord, and Type 1 is the most common and severe form, with life expectancy estimated at less than two years without medical intervention.
On Wednesday she took to Instagram to share a video with one of her babies as she giggled at the camera whenever Jesy coughed.
She penned in the caption: 'Why does she find coughing so funny' along with a laughing face emoji.
Advertisement
Jesy laughed back in the video as her little one squealed in delight and looked back at her.
Jesy Nelson shared a sweet video of her baby girl laughing as she planted a kiss on her in an adorable new social media video on Wednesday
The singer took to Instagram to share a video with one of her babies as she giggled at the camera whenever Jesy coughed
Jesy candidly
The heartwarming post comes after Jesy recently revealed that she burst into tears when she saw the girls' special feeding chairs.
As SMA1 causes progressive muscle weakness and wasting, Ocean and Story require feeding tubes due to severe swallowing, sucking and breathing difficulties, and need specially designed chairs to give them extra postural support.
Advertisement
After the two chairs arrived, the sight brought their mother to tears, as she explained it was 'another reminder of another obstacle we have to tackle' amid their health battle.
Alongside a snap of the chair, she penned: 'So the girls need special feeding chairs that came yesterday and I couldn't help but burst into tears yesterday when I saw them.
'It just made me feel so sad as it's just another reminder of another obstacle we have to tackle. Do any other SMA mummies feel this way?'
As well as caring for her babies, Jesy is currently hard at work campaigning for the NHS to expand the standard heel prick test to check for SMA1.
She has said that, had her twins had the test - which costs around £1 - and been diagnosed and started treatment earlier, their legs could have been saved.
She penned in the caption: 'Why does she find coughing so funny' along with a laughing face emoji. Jesy laughed back in the video as her little one squealed in delight
Advertisement
The heartwarming post comes after Jesy recently revealed that she burst into tears when she saw the girls' special feeding chairs
Advertisement




