Jesy Nelsons Baby Girl Giggling Amid Tough Times

has shared a heartwarming video of one of her daughters giggling with her mother, Janice on Thursday, after revealing that she broke down in tears at the weekend amid her twins devastating health battle.

The star, 34, welcomed daughters Ocean Jade and Story Monroe prematurely in May 2025 with her ex-fiancé, Zion Foster.

But last month, she revealed the devastating news that both babies had been diagnosed with genetic neuromuscular disease, Spinal Muscular Atrophy Type 1 (SMA1). 

The condition weakens the muscles by affecting the motor nerve cells in the spinal cord, and Type 1 is the most common and severe form, with life expectancy estimated at less than two years without medical intervention.

Jesy candidly

And on Thursday, she took to her Instagram Story to show followers an adorable clip of her daughter giggling away as her nan, Janice, nuzzled her face into her neck.

In another sweet clip, Jesy couldn't help but chuckle over her daughter's sweet mullet hairstyle, while she compared her other twin daughter to a cute Cabbage Patch doll as she ran her fingers through her curly dark hair.

The heartwarming posts come after Jesy revealed that she had burst into tears on Saturday when she saw the girls' special feeding chairs.

As SMA1 causes progressive muscle weakness and wasting, Ocean and Story require feeding tubes due to severe swallowing, sucking and breathing difficulties, and need specially designed chairs to give them extra postural support.

After the two chairs arrived, the sight brought their mother to tears, as she explained it was 'another reminder of another obstacle we have to tackle' amid their health battle.

Alongside a snap of the chair, she penned: 'So the girls need special feeding chairs that came yesterday and I couldn't help but burst into tears yesterday when I saw them.

'It just made me feel so sad as it's just another reminder of another obstacle we have to tackle. Do any other SMA mummies feel this way?'

As well as caring for her babies, Jesy is currently hard at work campaigning for the NHS to expand the standard heel prick test to check for SMA1.

She has said that, had her twins had the test - which costs around £1 - and been diagnosed and started treatment earlier, their legs could have been saved. 

And the star has already succeeded in getting a petition to reach over 100,000 signatures, calling for the government to fund and fast-track the process, meaning Parliament must consider it for debate.

But as she continues to push for the screening to be included in the newborn blood spot test and care for her daughters' medical needs, Jesy revealed she has parked her music career.

Appearing on Heart FM's Breakfast show, she told Amanda Holden and Jamie Theakston: 'Look listen I’d never say never to music, but for me, my girls are my main focus.

'I’ll be honest with you, I’ve not got time, I really don’t. They are my whole heart and soul and my main focus, and I want to continue advocating for them and getting this heel prick test changed and getting them strong, that’s my main focus.

'Because that’s going to determine their future. That’s my main focus right now.'

She previously described caring for the twins to the Daily Mail as an emotional rollercoaster, with some days being 'really f***ing s***' and others slightly lighter.

Jesy explained that she and ex-partner, Zion, never expected to be caring for their babies in such a way, and having to provide for their medical needs is a daily struggle.

She told how the medical procedures her babies must endure each day leave her feeling like she's hurting them as they cry and scream.