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Jesy Nelsons Twins Undergo More Hospital Tests

Jesy Nelson has revealed that her twin babies are back at Great Ormond Street Hospital having more tests done on Thursday. The singer, 34, revealed in January h...

Jesy Nelsons Twins Undergo More Hospital Tests
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has revealed that her twin babies are back at Great Ormond Street Hospital having more tests done on Thursday. 

The singer, 34, revealed in January her now nine-month-old twins, Ocean and Story, had been diagnosed with SMA Type 1, a rare muscle-wasting condition, and she has since been focused on caring for her little ones.

In a new update on Thursday, Jesy took to Instagram to share a sweet photo of her baby girls lying side-by-side on a hospital bed as they are examined by a doctor. 

The twins both adorably wore matching yellow and pink baby grows and had feeding tubes in their noses. 

In the snap, Ocean was seen staring and Story as she was examined and Jesy wrote: 'Ocean's face she's like "I see what you doing to my sister"'.  

Since her twins were diagnosed, Jesy has been campaigning for the NHS to introduce newborn testing on babies for SMA1, having said that a late diagnosis meant her twins are unable to ever walk.

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Jesy Nelson has revealed that her baby twins are back at Great Ormond Street Hospital having more tests done on Thursday

In a new update, Jesy took to Instagram to share a sweet photo of her baby girls lying side-by-side on a hospital bed as they are examined by a doctor

Despite the UK's National Screening Committee rejecting calls to introduce checks for another muscular disease in January, last week  announced plans for more than 400,000 babies to be screened for the condition from October 2026.

However,

'It is bit bittersweet because basically they are only doing it in certain areas of England, so if you do not live in that certain postcode or part of England then your baby won't be tested for SMA, which is really sad', she explained.

'It's essentially a postcode lottery for your baby which shouldn't be the case. All babies lives matter, so as amazing as it is there is still a long way to go in terms of that.

'I'm going to keep pushing and trying as much as possible to get this so it is in all areas of England and then also the petition you all kindly signed getting 100,000 signatures is now going to be debated in parliament which is just amazing.

'That is all down to you guys so thank you so so much, you're incredible and I am so appreciated of all the support and love, thank you so much.' 

At the start of the video, Jesy celebrated the 'major milestone' and said she is 'really proud' how far the campaign has come. 

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She said: 'I just wanted to come on here to share some information and news that I have heard over the last couple of days. 

'As you know I've been campaigning to try and get SMA as part of the newborn screening here in England. My girls were diagnosed with SMA Type 1 and unfortunately they weren't tested at birth because it wasn't here in England.

'They have now decided to roll that out in October for all babies in England to be tested at birth for SMA, which is absolutely incredible. 

'I know it is a really big moment for the SMA community because this has been going on for years trying to get this passed, so yeah it is a real proud moment.'

The singer has campaigned tirelessly for the NHS to expand its screening to check for spinal muscular atrophy following her own experience with her daughters.

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The pilot will see an estimated 400,000 babies tested in England.

The  currently carries out 'heel prick' tests on babies at around five-days-old to check for just 10 treatable conditions, including cystic fibrosis. 

In a letter addressed to the singer and Giles Lomax, chief executive of SMA UK, Streeting said: 'At our meeting I committed to seeing whether the in-service evaluation of SMA screening could be implemented faster and cover a wider geographical areas. 

'I am pleased to confirm that [screening] will now start in October this year rather than January 2025 as previously planned.' 

It comes after Jesy shared a bittersweet SMA update last week as she revealed it is a 'postcode lottery' whether your baby gets tested

'It's bittersweet because basically they are only doing it in certain areas of England, so if you do not live in that certain postcode then your baby won't be tested for SMA, which is really sad'

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