has shared new pictures of her twin daughters as they received treatment by doctors in Great Ormond Street Hospital whilst wearing their splints.
The former singer, 34, revealed in January that Ocean and Story had been diagnosed with Spinal Muscular Atrophy (SMA) - a genetic neuromuscular condition that weakens muscles by affecting motor nerve cells in the spinal cord.
The most severe form, Type 1, can have a life expectancy of less than two years without treatment.
In a fresh update with fans, Jesy took to social media to share adorable snaps of the twins receiving care from the medics in Great Ormond Street.
The tots could be seen snuggled up in a blanket as they shared the same bed, wearing splints on their legs.
In another snap, Jesy joked about how each visit to the children's hospital in London is an 'educational experience', sharing how alligators can live from 30 to 50 years in the wild.
Jesy Nelson has shared new pictures of her twin daughters as they received a check-up by doctors in Great Ormond Street Hospital whilst wearing their splints
The tots could be seen snuggled up in a blanket as they shared the same bed, wearing splints on their legs
Her update comes after an 'emotional day' on Wednesday as she visited a Scottish laboratory that has become the first to test for her twins' rare condition.
Posting a photo from the hospital alongside medical staff, she wrote: ' Emotional day in Scotland visiting the newborn blood spot screening laboratory for SMA'.
As part of a two-year pilot scheme, all babies born in Scotland will now be tested.
Earlier this week, it was announced Scotland would be the first part of the UK to introduce the testing, after which Jesy shared an Instagram story branding the news 'bittersweet' as the screening could have made her girls lives 'look so different'.
Despite her nine-month-old daughters' devastating prognosis that they may not live beyond the age of two, Jesy last month explained that despite the tragic news, she has decided to keep filming her Prime Video series as she fights to 'make a change'.
In a Q&A, she said: 'I just hope people continue to watch the next part of the journey. When the girls got their diagnosis, we decided that we wanted to continue filming.
'As hard as it was, we were like, 'You know what? There's a reason you guys are here, and we've got to make the best out of this situation'.'
Since going public with their diagnosis, Jesy has
Last month, she was reduced to tears as her petition surpassed 100,000 signatures, meaning it would now have to be debated by MPs in the House of Commons.
She said at the time: 'I cannot actually put into words how grateful I am that this moment has just happened right here! And it is all thanks to you guys.
'Thank you to every single person that took time out of their day to sign this petition. You have no idea how much this means to me and the SMA community. This is the first hurdle but we bloody did it and I truly believe that together we are going to make change!'
Jesy previously told the Daily Mail the medical procedures her babies must endure each day leave her feeling like she's hurting them as they cry and scream.
She described caring for the twins as an emotional rollercoaster, with some days being 'really f***ing s***' and others slightly lighter.
Jesy and ex-partner Zion never expected to be caring for their babies in such a way, and Jesy says having to provide for their medical needs is a daily struggle.
She said: 'Every day is so full-on - I can speak about it, but I'll never be able to explain how intense it is until you see it.
The former Little Mix singer, 34, revealed in January that Ocean and Story had been diagnosed with Spinal Muscular Atrophy (SMA) - a genetic neuromuscular condition that weakens muscles by affecting motor nerve cells in the spinal cord
Jesy shares Ocean and Story with her ex-fiancé Zion Foster
Speaking to Jamie Laing on his Great Company podcast, Jesy said she is hopeful that her babies will defy the odds now that they are receiving treatment and go on to have a longer life expectancy.
She explained: 'So spinal muscular atrophy is a muscular wasting disease, so they don't have a gene that we all have in our body.
'Their muscles are now deteriorating and wasting away, and if you don't get them treatment in time, eventually the muscles will all just die, which then affects the breathing, the swallowing, everything. And they will die before the age of two.
'It's not okay, but it is what it is, and I just have to accept it, and now just try and make the best out of this situation... And my girls are the strongest, most resilient babies and I really believe that they are going to defy all the odds.'
