has shared adorable new photos of her twins on Instagram on Monday following at Great Ormond Street Hospital.
The former singer, 34, revealed in January that Ocean and Story had been diagnosed with Spinal Muscular Atrophy (SMA) - a genetic neuromuscular condition that weakens muscles by affecting motor nerve cells in the spinal cord.
The most severe form, Type 1, can have a life expectancy of less than two years without treatment.
In a new update on Monday, Jesy enjoyed some fresh air with her baby girls as she revealed she had bought them new matching pink fluffy hats to keep warm.
The singer's daughters had their feeding tubes in their noses and were all wrapped up in their double pram as they enjoyed a walk.
It comes days after Jesy took to social media to share adorable snaps of the although she didn't go into specifics about the nature of their treatment.
Jesy Nelson has shared adorable new photos of her twins on Instagram on Monday following her daughters being fitted with leg splints at Great Ormond Street Hospital
Jesy enjoyed some fresh air with her baby girls as she revealed she had bought them new matching pink fluffy hats to keep warm
The nine-month-old babies could be seen snuggled up in a blanket as they shared the same bed, wearing splints on their legs.
Her update comes after an 'emotional day' on Wednesday as she visited a Scottish laboratory that has become the first to test for her twins' rare condition.
Posting a photo from the hospital alongside medical staff, she wrote: 'Emotional day in Scotland visiting the newborn blood spot screening laboratory for SMA'.
As part of a two-year pilot scheme, all babies born in Scotland will now be tested.
Earlier this week, it was announced Scotland would be the first part of the UK to introduce the testing, after which Jesy shared an Instagram story branding the news 'bittersweet' as the screening could have made her girls' lives 'look so different'.
Giles Lomax, the chief executive of the charity SMA UK, said the screening pilot in Scotland would be 'a huge impetus for other parts of the UK to speed up their own testing plans', saying: 'Every month another four babies are diagnosed with SMA and the clock is always ticking...
'With all three treatments now routinely available through NHS Scotland alongside newborn screening, the future for anyone diagnosed with SMA is very different compared to their peers who were diagnosed symptomatically...
'It basically gives children the life they deserve.'
Despite her nine-month-old daughters' devastating prognosis that they may not live beyond the age of two, Jesy last month explained that despite the tragic news, she has decided to keep filming her Prime Video series as she fights to 'make a change'.
In a Q&A, she said: 'I just hope people continue to watch the next part of the journey. When the girls got their diagnosis, we decided that we wanted to continue filming.
'As hard as it was, we were like, "You know what? There's a reason you guys are here, and we've got to make the best out of this situation".'
Since going public with their diagnosis, Jesy has
In the midst of their health battle, Jesy
The singer's daughters had their feeding tubes in their noses and were all wrapped up in their double pram as they enjoyed a walk
It comes days after Jesy took to social media as her twins received care from the medics at Great Ormond Street, although she didn't go into specifics about the nature of their treatment
The former Little Mix singer revealed in January that Ocean and Story had been diagnosed with Spinal Muscular Atrophy (SMA) - a genetic neuromuscular condition that weakens muscles by affecting motor nerve cells in the spinal cord
Jesy shares Ocean and Story with her ex-fiancé Zion Foster
Speaking to Jamie Laing on his Great Company podcast, Jesy said she is hopeful that her babies will defy the odds now that they are receiving treatment and go on to have a longer life expectancy.




