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has shared a sweet photo of her baby twins holding hands and watching TV in hospital amid their devastating spinal muscular atrophy (SMA) type 1 diagnosis.
The singer, 34, who shares her nine-month-old daughters Ocean and Story with ex Zion Foster, took to Instagram on Tuesday to share a snap of her girls with feeding tubes in their noses as they both lay on a hospital bed side by side.
The genetic neuromuscular disease SMA1 causes progressive muscle weakness and wasting, and feeding tubes are required due to severe swallowing, sucking and breathing difficulties.
Story and Ocean were seen holding hands as they wore matching white baby grows and were tucked into a knitted brown blanket.
She wrote: 'Watching TV together holding hands, my heart [crying emoji]'.
On Monday, Jesy also shared another photo of her baby girls with feeding tubes in their noses as she pushed them in their prams.
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Jesy Nelson has shared a sweet photo of her baby twins holding hands and watching TV in hospital amid their devastating spinal muscular atrophy (SMA) type 1 diagnosis
The singer, 34, shares her nine-month-old daughters Ocean and Story with ex Zion Foster, and took to Instagram on Tuesday to share the snap of her girls
Ocean and Story were wrapped up warm in matching pink hats, brown teddy bear coats and a knitted blanket.
Jesy captioned the snaps 'Ocean bear' and 'Story bear'.
The former star also posted photos of herself looking glam as she caught up with pals after sharing the heartbreaking reality of her daughters' daily lives.
Jesy told the Daily Mail the medical procedures her babies must endure each day leave her feeling like she's hurting them as they cry and scream.
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She described caring for the twins as an emotional rollercoaster, with some days being 'really f***ing s***' and others slightly lighter.
The singer is campaigning for SMA testing to be included in the newborn blood spot test, saying early diagnosis could dramatically improve a child's future.
She and ex-partner Zion never expected to be caring for their babies in such a way, and Jesy says is a daily struggle.
Jesy told the Daily Mail: 'Every day is so full-on - I can speak about it, but I'll never be able to explain how intense it is until you see it.
On Monday, Jesy also shared another photo of her baby girls with feeding tubes in their noses as she pushed them in their prams
The genetic neuromuscular disease SMA1 causes progressive muscle weakness. Pictured: Jesy pushing the babies in their prams last month
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The former Little Mix star also shared photos of herself looking glam as she caught up with pals after sharing the heartbreaking reality of her daughters' daily lives
Jesy told the Daily Mail the medical procedures her babies must endure each day leave her feeling like she's hurting them as they cry and scream
The singer is campaigning for SMA testing to be included in the newborn blood spot test, saying early diagnosis could dramatically improve a child's future (with ex Zion Foster)
'It's not OK, but it is what it is, and I just have to accept it, and now just try and make the best out of this situation... And my girls are the strongest, most resilient babies and I really believe that they are going to defy all the odds.'
