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broke down in tears after her petition for SMA1 screening at birth reached 100,000 on Friday and meant it would now have to be debated by MPs in the House of Commons.
The former star, 34, welcomed twin daughters Ocean Jade and Story Monroe, whom she shares with ex Zion Foster, prematurely in May 2025 and they were later diagnosed with the devastating condition.
The genetic neuromuscular disease SMA1 causes progressive muscle weakness and wasting, and feeding tubes are required due to severe swallowing, sucking and breathing difficulties.
Jesy has been demanded the NHS expand the standard heel prick test to check for the condition and said test which cost around £1 each could have saved [her twins'] legs' by giving them access to earlier treatment.
Now taking to Instagram the singer shared a clip of herself and a group of pals watching the signatures rise, before finally hitting 100,000 leaving them all collapsing into both cheers and tears - the total has since then risen to way over 120,000.
An emotional Jesy captioned the post: 'I cannot actually put into words how grateful I am that this moment has just happened right here! And it is all thanks to you guys'.
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Jesy Nelson broke down in tears after her petition for SMA1 screening at birth reached 100,000 on Friday and meant it would now have to be debated by MPs in the House of Commons
The former Little Mix star , 34, welcomed twin daughters Ocean Jade and Story Monroe, in May 2025 and they were later diagnosed with the devastating condition.
Jesy has demanded the NHS expand the standard heel prick test to check for the condition, saying tests cost around £1 each and that they 'could have saved [her twins'] legs' by giving them access to earlier treatment
'Thank you to every single person that took time out of their day to sign this petition. You have no idea how much this means to me and the SMA community. This is the first hurdle but we bloody did it and I truly believe that together we are going to make change!'.
As she continues to campaign for screening for the condition to be included in the newborn blood spot test, she's revealed she has parked her music career.
Appearing on Heart FM's Breakfast show on Thursday, Jesy told and her focus is now solely on the twins.
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She explained: 'Look listen I’d never say never say never to music, but for me, my girls are my main focus, I’ll be honest with you, I’ve not got time, I really don’t.
'They are my whole heart and soul and my main focus, and I want to continue advocating for them and getting this heel prick test changed and getting them strong, that’s my main focus.
'Because that’s going to determine their future. That’s my main focus right now.'
She previously told Daily Mail the medical procedures her babies must endure each day leave her feeling like she's hurting them as they cry and scream.
She described caring for the twins as an emotional rollercoaster, with some days being 'really f***ing s***' and others slightly lighter.
Taking to Instagram the star shared a clip of herself and a group of pals watching the signatures rise, before finally hitting 100,000 as they broke into both cheers and tears
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An emotional Jesy captioned the post: 'I cannot actually put into words how grateful I am that this moment has just happened right here! And it is all thanks to you guys'.
As she continues to campaign for screening for the condition to be included in the newborn blood spot test, she's revealed she has parked her music career
Meanwhile in her new Prime Video documentary Jesy Nelson: Life After Little Mix, Jesy laid bare the mystery behind her departure from the band
But despite the sisterly bond she formed with her bandmates , the singer said they were more like strangers after she abruptly quit following a secret suicide attempt in 2020
And the singer says her lawyer's decision to confirm her departure without prior permission drove a wedge between her and the band.
