Advertisement
has shared a heartwarming video of her twin daughters holding hands on Tuesday, after revealing that she broke down in tears at the weekend amid their devastating health battle.
The star, 34, welcomed daughters Ocean Jade and Story Monroe prematurely in May 2025 with her ex-fiancé Zion Foster.
But last month, she revealed the devastating news that both babies had been diagnosed with genetic neuromuscular disease, Spinal Muscular Atrophy Type 1 (SMA1).
The condition weakens the muscles by affecting the motor nerve cells in the spinal cord and Type 1 is the most common and severe form, with life expectancy estimated at less than two years without medical intervention.
Jesy candidly opened up on her babies' heartbreaking diagnosis in her documentary Life After Little Mix, and often shares updates about their health battle on Instagram.
And on Tuesday morning, she took to her Instagram Stories to show followers an adorable clip of the two girls lying next to each other in their bassinets and reaching out to hold the other's hand.
Advertisement
Jesy Nelson has shared a heartwarming video of her twin daughters holding hands on Tuesday, after revealing that she broke down in tears at the weekend amid their devastating health battle
The Little Mix star, 34, who welcomed daughters Ocean Jade and Story Monroe prematurely in May 2025 - revealed last month that both girls had been diagnosed with Spinal Muscular Atrophy Type 1
The singer set the video to Ben E. King's classic Stand By Me and followed it up with a sweet snap of the sisters having both fallen fast asleep while still hand-in-hand.
The heartwarming update comes after Jesy revealed that she had burst into tears on Saturday when she saw the girls' special feeding chairs.
As SMA1 causes progressive muscle weakness and wasting, Ocean and Story require feeding tubes due to severe swallowing, sucking and breathing difficulties, and need specially designed chairs to give them extra postural support.
After the two chairs arrived, the sight brought their mother to tears, as she explained it was 'another reminder of another obstacle we have to tackle' amid their health battle.
Advertisement
Alongside a snap of the chair, she penned: 'So the girls need special feeding chairs that came yesterday and I couldn't help but burst into tears yesterday when I saw them.
'It just made me feel so sad as it's just another reminder of another obstacle we have to tackle. Do any other SMA mummies feel this way?'
As well as caring for her babies, Jesy is currently hard at work campaigning for the NHS to expand the standard heel prick test to check for SMA1.
She has said that had her twins had the test, which costs around £1, and been diagnosed and started treatment earlier, their legs could've been saved.
Jesy candidly opened up on her babies' heartbreaking diagnosis in her documentary Life After Little Mix (seen), and often shares updates about their health battle on Instagram
And on Tuesday morning, she took to her Instagram Stories to show followers an adorable clip of the two girls lying next to each other in their bassinets and reaching out to hold the other's hand
Advertisement
And the star has already succeeded in getting a petition calling for the government to fund and fast-track to process to reach over 100,000 signatures, meaning Parliament must consider it for debate.
But as she continues to push for the screening to be included in the newborn blood spot test, care for her daughters' medical needs, Jesy revealed she has parked her music career.
Appearing on Heart FM's Breakfast show, she told Amanda Holden and Jamie Theakston: 'Look listen I’d never say never to music, but for me, my girls are my main focus.
'I’ll be honest with you, I’ve not got time, I really don’t. They are my whole heart and soul and my main focus, and I want to continue advocating for them and getting this heel prick test changed and getting them strong, that’s my main focus.
'Because that’s going to determine their future. That’s my main focus right now.'
She previously described caring for the twins to Daily Mail as an emotional rollercoaster, with some days being 'really f***ing s***' and others slightly lighter.
Advertisement
Jesy explained that she and ex-partner Zion never expected to be caring for their babies in such a way, and having to provide for their medical needs is a daily struggle.
She told how the medical procedures her babies must endure each day leave her feeling like she's hurting them as they cry and scream.
The heartwarming update comes after Jesy revealed that she had burst into tears on Saturday when she saw the girls' special feeding chairs
'Every day is so full-on - I can speak about it, but I'll never be able to explain how intense it is until you see it,' Jesy told the Daily Mail.
Advertisement




