Aaron Chalmers’ son Oakley has been hospitalised for another ‘unexpected’ procedure as he battles a rare genetic disorder.
The Geordie Shore star, 38, welcomed Oakley, three, with his ex-girlfriend Talia Oatway in 2022 and he was diagnosed with Apert Syndrome at birth.
The NHS describes Apert Syndrome as ‘a type of complex craniosynostosis that effects the skull, hands and feet,’ with bones fusing together before birth.
In an update shared by Talia on Instagram on Monday, she revealed Oakley had been transferred to a children’s hospital to have another procedure on his head.
She wrote: ‘Unexpected hospital transfer to another children’s hospital yesterday. Oakley’s CT scan got looked into by both hospitals and he needs another procedure in Oakley’s head.
‘I find it crazy how many GAs Oakley has needed in the 3 years of his life. Every day he stands strong and gets on with anything that life throws at him.
Aaron Chalmers’ son Oakley has been hospitalised for another ‘unexpected’ procedure as he battles a rare genetic disorder, Talia Oatway shared on Instagram on Monday
The Geordie Shore star, 38, welcomed Oakley, three, with his ex-girlfriend Talia Oatway in 2022 and he was diagnosed with Apert Syndrome at birth
‘I love you so much #apertsyndromeawareness #autismawareness.’
Following Oakley’s birth in 2022, Aaron and Talia, 33, revealed their ‘little soldier’ would be ‘in and out of surgery for 18-24 months’, with his mother staying by his side. Aaron and Talia split four months after the birth.
In August, Talia took part in an Instagram Q&A where she revealed their son may need a wheelchair soon and told how she often cries over his condition.
One fan wrote to her: ‘You are a great woman, a strong, very strong, woman.’, to which she replied: ‘Thank you, I honestly don’t think I’m strong. I am very emotional at times.
‘I cry a lot especially in situations where I can’t get my point across or when I’m overwhelmed.
‘I have tried to hold my emotions in as much as I can especially when the kids are around.’
One fan then told how Oakley was doing ‘amazing’ as he walked on his own in a recent social media post.
She then replied saying: ‘Ah thank you, he will only walk outside for a very very short time (like a few minutes) at home he walks more.
Talia wrote on Instagram: ‘Unexpected hospital transfer to another children’s hospital yesterday’
Following Oakley’s birth in 2022, Aaron and Talia, 33, revealed their ‘little soldier’ would be ‘in and out of surgery for 18-24 months’
‘The bones on the bottom of his feet are becoming more prominent, which is where I need to keep an eye on. A lot of Apert children require feet surgery and depend on wheelchairs at times.
‘This is due to the bones on the bottom of their feet causing pain up to their backs. He really is doing amazing.’
In May 2023 Talia shared the first photos of their son Oakley as she discussed his rare genetic syndrome and detailed the tot’s strength.
The couple, who share two other children together, announced their split the previous December, four months after their youngest was born with serious health issues.
After keeping his diagnosis private, Talia explained that Oakley, then just seven months, was born with Apert Syndrome, in a heartbreaking post.
In a brave caption, the influencer detailed the ‘toughest seven months of her life’ and praised her son for his bravery and determination, after finally ‘coming to terms with everything.’
Sharing a series of photos from the hospital, Talia cradled Oakley in her arms, another sweet snap showed him smiling widely with a stuffed toy monkey.
She penned: ‘This is OAKLEY. It has been the toughest 7 months of my entire life. I have been thrown into a medical world, with no forewarning, no time to prepare.
In May 2023 Talia shared the first photos of their son Oakley as she discussed his rare genetic syndrome and detailed the tot’s strength
‘Only now I feel like I’m coming to terms everything, finally coping with how I’m feeling, embracing our new normal.
‘This is my beautiful son Oakley Bleu, he was born with a rare genetic syndrome called Apert Syndrome.
‘Apert Syndrome causes the premature fusion of sutures in the skull, causing a different head shape. Syndactyly – fusion of the bones in the hands & feet). Cleft of the hard palate causing difficulties with feed and speech.
‘Choanal stenosis (narrowing of the airway) causing breathing difficulties. Apert Syndrome often causes a global developmental and learning delay. (Oakley sleeps on a vent mask) and uses oxygen.’
