Coleen Rooney shares a heartfelt tribute to her late sister Rosie on the 13th anniversary of her death

Coleen Rooney shares a heartfelt tribute to her late sister Rosie on the 13th anniversary of her death

Coleen Rooney shared a heartfelt tribute to her late sister Rosie on the 13th anniversary of her death on Monday.

The WAG, 39, shared a sweet snap of the teen, who passed away in 2013 at the age of just 14, holding a loved one’s hand as she wore a pink knitted hat.

Coleen added a caption to her Instagram post, which read: ‘Another year since you left us Rosie. Keep watching over us.’

Rosie passed away following a lifelong battle with Rett syndrome, a rare brain disorder that causes severe disabilities.

The disorder affects physical movement and can manifest in various symptoms in each individual case.

Rosie was taken in as a foster child by Coleen’s parents, bricklayer Tony and Colette, a former nursery nurse, when she was two. 

Coleen Rooney shares a heartfelt tribute to her late sister Rosie on the 13th anniversary of her death

Coleen Rooney shared a heartfelt tribute to her late sister Rosie on the 13th anniversary of her death on Monday

Coleen Rooney shared a heartfelt tribute to her late sister Rosie on the 13th anniversary of her death on Monday 

Rosie passed away aged just 14 following a lifelong battle with Rett syndrome, a rare brain disorder that causes severe disabilities

Rosie passed away aged just 14 following a lifelong battle with Rett syndrome, a rare brain disorder that causes severe disabilities 

Although they were aware she was disabled, they did not know the full extent of her condition, which has no cure.

Coleen is now a mother herself to sons Kai, 16, Klay, 11, Kit, eight, and Cass, six, with her retired footballer husband Wayne, 40.

Coleen has always been very open about her younger sister and in 2024 spoke about how her family always knew ‘Rosie was different’.

The WAG made the comment in her Wagatha Christie Disney+ documentary where she explained: ‘When Rosie came along, she was a massive part of our lives. She was the sister that I never thought I was going to have.’

Speaking to her mother and her father, Tony, she continued: ‘I used to do her hair and used to love picking clothes with my mum for her.

‘She brought that little bit extra to the house. We fell in love with her.’

Yet the family soon realised that Rosie was struggling with her development, and after a series of hospital tests, she was diagnosed with Rett syndrome.

Coleen explained: ‘Rosie, she struggled. She couldn’t walk and talk and would be in pain and sick, but she still put a smile on her face.

‘Sometimes she used to force a laugh out. I think it was just to make my mum and dad happy.

Rosie was taken in as a foster child by Coleen's parents, bricklayer Tony and Colette, a former nursery nurse, when she was two

Rosie was taken in as a foster child by Coleen’s parents, bricklayer Tony and Colette, a former nursery nurse, when she was two 

‘Gradually her brain wasn’t functioning so she couldn’t eat anymore, couldn’t talk, move.’

Rosie needed 24-hour care and after suffering from ‘lots of complications’ and being admitted to intensive care, Colette revealed the family decided to bring her home to spend her final days surrounded by her loved ones.

‘We had a sleepover, one last sleepover, all of us together,’ she explained. ‘And then we had a big party to celebrate her life.’

Coleen said: ‘To lose a child is the worst thing that could ever happen to anyone, but when you look back now, she gave us so many good years of happiness and love.’

During her time on I’m A Celebrity…Get Me Out of Here in November 2024, Coleen broke down in tears as she opened up about the loss of her little sister.

The emotional conversation began when Coleen’s campmate, boxer Barry McGuigan became emotional as he spoke about his late daughter Danika who lost her battle with cancer in 2019 aged 33.

Coleen then confided in Dean and Oti saying: ‘Even when Rosie died, I kept it together for me mum and dad.

‘She was 14 when she died, she’d be 26 now. It’s hard to lose a child, I’ve always said that… so we’re lucky to have what we’ve got.’

WHAT IS RETT SYNDROME? THE NEUROLOGICAL DISORDER THAT LEAVES KIDS UNABLE TO SPEAK, EAT, WALK, TALK AND BREATHE

One child in 12,000 is born with Rett Syndrome, yet few people have heard of it.

The genetic disorder affects almost exclusively females, causing them to regress neurologically and physically.

The progression of the disease can be roughly divided into four stages.

During the first stage, from about the age of six to 18 months, a baby slows in development, loses interest in play, stops making eye contact, starts walking awkwardly and makes repetitive hand movements.

The second stage, known as ‘rapid destruction’, begins between the ages of one and four.

The child finds it increasingly difficult to communicate and learn and there is often a deterioration in other brain functions.

Symptoms include an inability to control the hands, sudden distress teamed with screaming, unsteadiness, breathing problems, difficulty sleeping, slow head growth and digestive problems.

The third stage, the ‘plateau’, begins between age three and ten.

Limbs become floppy, epilepsy may develop and there may be weight loss and teeth-grinding.

However, many parents say children are less distressed and show more interest in their surroundings.

The final stage can last for decades. Usually severe bending of the spine – scoliosis – develops, as well as losing the ability to walk.

Almost all cases are caused by a mutation in the MECP2 gene which prevents nerve cells in the brain from working properly.

Currently there is no cure and only the symptoms are treated. 

Around three quarters of sufferers will live into their 50s, according to Rett UK. The National Institute of Health says it’s not possible to make reliable estimates about life expectancy beyond the age of 40. 

According to Rettsyndrome.org, data from the Natural History Study have determined that a girl with Rett has a 100 per cent chance of reaching age 10, greater than 75 per cent chance of reaching age 30, and a greater than 50 per cent chance of reaching age 50. 

But due to the rarity of Rett, very little has been published about life expectancy. 

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