Miriam Margolyes, 82, Opens Up About Her Father’s Heartbreaking Battle with Dementia: “He Transformed Into a Stranger, Leaving Me Utterly Devastated”

Miriam Margolyes has opened up about her late father Joseph’s battle with dementia in support of Alzheimer’s Society, the UK’s leading dementia charity.

The charity’s research shows that 900,000 people in the UK have a form of dementia and by 2040 1.6 million people will be living with the condition in the UK, with many millions more carers, partners, families and friends affected.

The TV personality has shared details of her father’s experience to highlight a series of adverts featuring couples affected by dementia who have vowed to stay together in ‘sickness and in health’. 

Speaking emotionally, Miriam shared the memory of when her father began showing symptoms of dementia.

‘When my father developed his symptoms in his early 90s, I had a feeling that something was wrong, but I tried to push it away.

Miriam Margolyes, 82, has shared heartbreaking details of her father's dementia as she opens up in support of Alzheimer's Society (Miriam pictured with her father Joseph)

Miriam Margolyes, 82, has shared heartbreaking details of her father’s dementia as she opens up in support of Alzheimer’s Society (Miriam pictured with her father Joseph) 

Describing the disease, Miriam said: 'I didn't know what it was then – but the illness that had taken hold of him had a vice like grip, and my father was no longer the man I knew. It was utterly devastating'

Describing the disease, Miriam said: ‘I didn’t know what it was then – but the illness that had taken hold of him had a vice like grip, and my father was no longer the man I knew. It was utterly devastating’

‘It was only when neighbours phoned me and said Daddy was on their doorstep saying that they were in his house, that I realised he couldn’t be left on his own anymore and that Alzheimer’s – I didn’t know what it was then – but the illness that had taken hold of him had a vice like grip, and my father was no longer the man I knew. It was utterly devastating.’ 

Discussing how the disease progressed, she explained: ‘Every now and again I had glimpses of the Daddy who had looked after me and had been my support and my rock. But very little; he became more and more of a shell and a husk.

‘It wasn’t fair because he was a good, kind, loving man and he just seemed to disappear in front of my eyes. I couldn’t deal with it – I didn’t know what to do or who to ask.’

The emotional ad for Alzheimer Society, narrated by actor Colin Firth, shows the realities of living with dementia as a wife cares for her husband as the condition gets progressively worse.

Miriam also opened up about how her father’s dementia changed the couple’s relationship.

‘Unfortunately as you get older and when illness strikes, the whole basis of your relationship changes. Dependency changes, expectation changes, capacity changes.

‘The person that you fell in love with and longed to be with when you began your love affair, then at the end of your lives, there is a stark realisation that things have changed utterly and forever.

The star, who is in a relationship with Heather Sutherland, added: ‘I have been with my partner for 54 years and I hope we will be until we are both corpses!’ 

Discussing how the disease progressed, she explained: 'Every now and again I had glimpses of the Daddy who had looked after me and had been my support and my rock. But very little; he became more and more of a shell and a husk' (Miriam pictured with her parents)

Discussing how the disease progressed, she explained: ‘Every now and again I had glimpses of the Daddy who had looked after me and had been my support and my rock. But very little; he became more and more of a shell and a husk’ (Miriam pictured with her parents)

She added: 'It wasn't fair because he was a good, kind, loving man and he just seemed to disappear in front of my eyes. I couldn't deal with it – I didn't know what to do or who to ask'

She added: ‘It wasn’t fair because he was a good, kind, loving man and he just seemed to disappear in front of my eyes. I couldn’t deal with it – I didn’t know what to do or who to ask’

Miriam also opened up about how her father's dementia changed the couple's relationship (Miriam and her mother)

Miriam also opened up about how her father’s dementia changed the couple’s relationship (Miriam and her mother)

The star, who is in a relationship with Heather Sutherland, added: 'I have been with my partner for 54 years and I hope we will be until we are both corpses!'

The star, who is in a relationship with Heather Sutherland, added: ‘I have been with my partner for 54 years and I hope we will be until we are both corpses!’

‘I think it is just joyous to know someone that well, to trust someone that much and to know that you are loved. Life is sweeter shared.’ 

Chief Executive of Alzheimer’s Society Kate Lee said: ‘We’re so grateful to supporters like Miriam for sharing their personal stories about dementia to raise awareness of this devastating condition. 

‘One in three people born in the UK today will develop dementia and it’s the UK’s biggest killer. Through our Ultimate Vow campaign, we want everyone to know that Alzheimer’s Society is here to provide help and hope. 

‘But we can’t do it without support. Please donate today at alzheimers.org.uk so we can reach even more people affected by dementia.’

A third of us will develop dementia in our lifetimes. Alzheimer’s Society vows to help end the devastation caused by dementia. Visit alzheimers.org.uk for more information or to donate. 

What is Alzheimer’s and how is it treated? 

Alzheimer’s disease is a progressive, degenerative disease of the brain in which the build-up of abnormal proteins causes nerve cells to die.

This disrupts the transmitters that carry messages, and causes the brain to shrink. 

More than 6million people suffer from the disease in the US, where it is the 6th leading cause of death, and more than 1million Britons have it.

WHAT HAPPENS?

As brain cells die, the functions they provide are lost. 

That includes memory, orientation and the ability to think and reason. 

The progress of the disease is slow and gradual. 

On average, patients live five to seven years after diagnosis, but some may live for ten to 15 years.

EARLY SYMPTOMS:

  • Loss of short-term memory
  • Disorientation
  • Behavioral changes
  • Mood swings
  • Difficulties dealing with money or making a phone call 

LATER SYMPTOMS:

  • Severe memory loss, forgetting close family members, familiar objects or places
  • Becoming anxious and frustrated over inability to make sense of the world, leading to aggressive behavior 
  • Eventually lose ability to walk
  • May have problems eating 
  • The majority will eventually need 24-hour care   

HOW IT IS TREATED?

There is no known cure for Alzheimer’s disease.

However, some treatments are available that help alleviate some of the symptoms.

One of these is Acetylcholinesterase inhibitors which helps brain cells communicate to one another. 

Another is menantine which works by blocking a chemical called glutamate that can build-up in the brains of people with Alzheimer’s disease inhibiting mental function. 

As the disease progresses Alzheimer’s patients can start displaying aggressive behaviour and/or may suffer from depression. Drugs can be provided to help mitigate these symptoms.   

Other non-pharmaceutical treatments like mental training to improve memory helping combat the one aspect of Alzheimer’s disease is also recommended. 

 Source: Alzheimer’s Association and the NHS

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